One of the outcomes of 21st Century Cures (2016) and other legislation has been increased direct access to patient health records, like lab tests, along with interoperability.
In JAMA Neurology this month, see an op ed speculating how these rules should, or could, play out in Alzheimer's disease, as more accurate tests roll into the market. "Bringing Alzheimer Disease Testing and Results Disclosure into the 21st Century Cures Act," by Largent & Bradbury, here.
The article has a number of interesting citations, including these:
Schindler & Bateman (2021) Combining blood based biomarkers to predict risk for Alzheimer's disease dementia. Nature Aging here.
Filippi et al. (2022) Amyloid-related brain imaging, systematic review. JAMA Neurol here.
Jansen et al. (2022) Prevalence of amyloid abnormalities and the Alzheimer disease spectrum [19,000 patients], JAMA Neurol, here.