Cancer Letter, a trade journal edited by Paul Goldberg, has published a cover article on MED-C, a proposed genomic registry to collate genomic and community outcome data in oncology. I discussed the MED-C program in an earlier post (February 1, 2015; "Is the Learning Healthcare System Almost Suddenly Here?" - here).
On May 8, the Cancer Letter published a detailed article on MED-C, plus a lengthy interview with its leader, Dr. Dane Dickson. Together, the articles total almost 10,000 words. Links after the break.
Cancer Letter's home page is here. The article about MED-C is here. The detailed interview with Dr. Dickson is here. Cancer Letter also posts a six-page white paper about MED-C, here. The MED-C.org public website is here. (See also a case study of one of Dr. Dickson's patients, where an important mutation was missed on hot spot sequencing but found on full sequencing - here.)
The MED-C white paper, in the cloud here.