NIH Workshop Website here. (http://www.nih.gov/precisionmedicine/workshop.htm)
Clip of NIH webpage follows, including white paper links at bottom.
See also coverage of the NIH event at GENOMEWEB, here. See also the home page for the NIH "National Advisory Council for Human Genome Research," NACHGR, here.
For a February 20, 2015 FDA workshop regulation of NGS/WGS, see here.
Update: The post-meeting NIH meeting notes [13 pages] are available here.
For a February 20, 2015 FDA workshop regulation of NGS/WGS, see here.
Update: The post-meeting NIH meeting notes [13 pages] are available here.
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NIH Workshop on Building a Precision Medicine Research Cohort
On February 11–12, 2015, NIH will host a workshop to discuss the opportunities and challenges around building a large research cohort focused on precision medicine. We look forward to hearing from several leading experts from many disciplines and sectors. While we are at capacity for in-person attendance, the event will be webcast live both days.
Workshop Agenda (PDF - 438KB)
Workshop Participant List (PDF - 78KB)
Workshop Planning Team White Papers
Four working groups from many scientific disciplines and sectors were assembled in advance of the workshop (Precision Medicine Initiative: Building a Large U.S. Research Cohort) to identify challenges and opportunities related to building a large research cohort and to outline concrete steps to meet these challenges. The working group members brought expertise in epidemiology, genomics, privacy, health information, and mobile technologies. These reports reflect the views of the authors and were designed to aid discussion at the NIH Workshop and do not represent official NIH findings.
Read the White Papers:
- Building a Consortium of Cohorts — Cohort Identification and Participant Recruitment (PDF - 193KB)
- Participant Engagement, Data Privacy, and Novel Ways of Returning Information to Participants (PDF - 152KB)
- Data Collection and Mobile Technologies (PDF - 481KB)
- Opportunities and Challenges Related to the Use of Electronic Health Records Data for Research (PDF - 184KB)